Venice Beach, California( CNN) As a small child, she frisked hide-and-seek with nannies, rent out IVs to scoot around the hospital flooring naked and left an blowup of glare in her aftermath.
And as an adult, Claire Wineland has continued living out loud, even as their own bodies fails her.
Claire, 20, has cystic fibrosis, a genetic and terminal progressive sicknes that’s territory her in the hospital for a one-fourth of their own lives. Ask what’s on her bucket roster, and she’ll respond she doesn’t have one.
Fixating on a checklist of points before she goes “sounds exhausting, ” she answers, especially “when you’ve been vanishing your entire life.” Instead, she’d preferably focus on doing all she can in each moment.